|Alexis all ready for the CCFA 2012 walk!|
We encountered our first leak today. Not to bad at all, but I wasn't expecting to have to change her entire appliance after (almost) 3 days. I am going to try and get her used to wearing the ostomy belt, as I know that can improve the amount of time between bag changes. I was definetly more comfortable and relaxed changing the wafer, cutting it to size etc etc.. this time around vs. during the teaching at the hospital. However, I am kind of worried I cut the wafer just a tad too big. I know this is a learning experience for the both of us, and I am hoping I can perfect it sooner rather than later.
I am on the hunt for a band for her to wear to cover the bag (think of a belly band--very similar). It will hold the bag closer to her body, thus being more secured and it will cover it under her shirts (since most of her shirts are form fitting). They make special ones for individuals with ostomys that you can tuck into a pocket, and I am not having any luck finding them in her size. We ventured out to the grocery store today and she was concerned about other people seeing it, so I want to get one as soon as I can, especially with school starting in a little over a month for her.
Still no pathology report on Alexis' colon. I am getting a little antsy. I hope it doesn't mean anything bad. For once, I hope we have good news and they find no indication of Crohns whatsoever. Prayers that she is healed of this disease for good!