|Day after her operation|
So, again.. my email address is firstname.lastname@example.org. I know I posted it a few entries back, but I wanted to post it again for any new people who come across my blog.
So, here we go.
|My husband reading Alexis her cards|
We arrive at Children's Hospital around 6:30 am on 10/4/12. My husband, Alexis and I head straight up to the surgical wing and wait an hour to be called back to the prep room. Our surgeon came in, went over everything we needed to know (and answered all 5,000 questions I had) then the anesthesiologist came in and went over all his information. Shortly after, Alexis was wheeled away. Again, I was left with a pit in my stomach and had to fight back the tears. It was hard, as letting your child go into ANY operation is scary, but I felt more comfortable than I did the first go round.
This operation was scheduled to take roughly 6 hours or so. Great. TWICE as long as the first one. I felt like I barely made it through the last time, I didn't know how I would manage to stay sane for that long. Kyle and I went off to the cafeteria for some breakfast. We made it back up and waited (and napped) and waited until finally her surgeon came out.
|5 days post op|
Back to the surgery..
Alexis was pretty medicated on the day of the operation and the day after. It seems all she did was sleep. I was grateful because I can only imagine how uncomfortable she had to of felt. She was on automatic suction, and had a catheter-- so she didn't move out of her bed until about 2 full days post op. This operation was twice as long as the first, and it seemed to take twice as long for the anesthesia to really wear off. I made sure she remembered to push her pump pretty often (she was also on a continuous drip) I was doing everything in my power to ensure the pain wasn't coming through.
Recovery wise, things took alot longer than I had anticipated. I went into this surgery, expecting the recovery process we had during the first operation. Alexis went in on a Thursday and released on a Monday morning. Her bowels woke up almost right away and her pain was so well managed she was only on a pain pump the first 24 hours or so. This time around, Alexis had an NG tube hooked up for a week, as well as the pain pump. Her bowels woke up post op day#6 and the NG was removed on day 7 in the morning (thank goodness, otherwise we would have had to do tube feedings) I tried so hard not to rush the recovery process, but honestly, I was going a little stir crazy..and I missed having my entire family under one roof! It was rough on all of us, however, looking back I know we were right where we needed to be.
Now, of course we had to run into some problems. Alexis had been on a strong antibiotic after surgery and she developed a yeast rash ALL over her backside. On top of that, she started running fevers out of no where. We were concerned of infection so the Drs ordered a fever workup which included: a chest xray (to check for pneumonia), a urine sample (to check for a UTI (very common after having a catheter placed) and blood samples to check her white blood cell count (which is an indicator for an infection). Everything came back normal except for her blood samples, but her wbc was only slightly elevated.
|Infected IV site. Notice the burns? !|
|6 days post op. Craft time with little sis!|
I really wish I would not have waited so long to update. I am jumbling my brain trying to remember certain details, and I am at a loss. So for now, I think I will call it quits. As I remember, I will come back and edit, or post more details in a later blog. Alexis' surgeon wanted to preform her take down 6-8 weeks from this operation, however, I requested that we hold off until the beginning of January. She has already missed a ton of school, the holidays will be upon us (as well as her birthday and her party!) and my husband and I just can't afford another week of no income.
My husband has an awesome job, and makes more than enough to allow me to stay home with our kids. However, there is no paid time off. He was forced to take an entire week off a few weeks prior to Alexis' surgery, and then he took a week off to be by Alexis' side after the operation. We pretty much blew through our savings during that time. In no way are we struggling, things are just alot tighter right now. It stresses me out because I am used to having a cushion to fall back on, and being so close to the holidays and all.. doesn't help. But we will make it through, Christmas will be amazing, as well as Alexis' SIXTH birthday. Financial woes just seem to follow anyone who is struggling with a chronic disease. I pray that what we are doing for Alexis now, secures her future even more. I hate the thought of her dealing with this for the rest of her life.. I don't ever want her to wonder "How am I going to pay for bills and/or the things I need on top of medication and/or surgical operation". I would give up everything I had before I let that happen.
Other than that, things have been going great. Alexis is 23 days post op today, and things are great. She is back in school and back to learning her dance routines in drill team! We also learned that we are having ANOTHER baby girl in March, and although I had hoped for a boy.. I am extremely excited. :) Alexis can't wait to hold her and she is extremely excited that she will always be the "biggest" sister :) Life has thrown my family quite the curve ball, but we are back on track now. Once we get Alexis through this next operation, I pray for nothing but smooth sailing and distant memories of IBD after that.
Thanks for checking in. XO